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My purpose is to strengthen connections among organizations and individuals to better serve the millions of Americans who, like me, have been diagnosed with a rare condition. For years, I have dedicated myself to patient advocacy and have worked with many wonderful people of similar vision. As our stories connect, we empower a larger community to improve lives and build relationships, extending a helping hand and offering a message of Hope.
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Personalized care
No two people experience a disease the same way. I try to listen deeply to each person’s experience and provide advice based on their unique circumstances.
People as individuals
We are more than our diseases. In addition to medical support, I want every person affected by rare disease to connect with others who’ve fought their fight — so they can see that there is a tomorrow.
Patient empowerment
I want all patients to understand their disease, be able to advocate for themselves, and know which questions to ask. In addition to personally helping patients,, I give them the knowledge and confidence they need to help themselves.
Personalized care
No two people experience a disease the same way. I try to listen deeply to each person’s experience and provide advice based on their unique circumstances.
People as individuals
We are more than our diseases. In addition to medical support, I want every person affected by rare disease to connect with others who’ve fought their fight — so they can see that there is a tomorrow.
Patient empowerment
I want all patients to understand their disease, be able to advocate for themselves, and know which questions to ask. In addition to personally helping patients,, I give them the knowledge and confidence they need to help themselves.
1 out of 10 Americans affected by rare diseases.
Patients lacking full diagnosis information.
Number of rare conditions without specific foundations.
Children with rare disease in the U.S. alone.
Rare diseases with no FDA-approved treatment.
Different types of known rare cancers.
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There no one better to help you know what to do in your current situation than someone who has already gone through it. I'm eager to see what next shift Yehuda will bring to the patient advocacy world. I'm sure It will be innovative because as it is, Yehuda's "formula" for patient success is way ahead of its curb.
Very few people can distill your obstacles and present you with a solution you can execute instantly. Yehuda is one such individual. Knowledge is one thing, but Yehuda's care and dedication he puts into every individual is just Mindblowing 🤯
I met Yehuda about 5 yrs ago when he was recommended as a contact for the hydrocephalus association since then we have become good friends and been in touch regularly. Yehuda has a wealth of knowledge in many unchartered areas of medicine and has a great sense of humor. Yehuda's contagious smile has made him more friends than many on this earth!
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I created Highway of Hope to be the organization I wish I had access to when I was diagnosed. HOH empowers those with rare diseases by connecting them with meteors, doctors, and legislators — so they can live life to its fullest despite their disease. I'd love for you to check it out there!
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